NCPI FHIR Implementation Guide v2
0.1.0 - ci-build

NCPI FHIR Implementation Guide v2 - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Table of Contents

.. 0 Table of Contents
... 1 Home
... 2 Authors
... 3 Conformance
... 4 Contact
... 5 Contributing
... 6 FHIR Basics
... 7 IG Versioning
... 8 Must Support
... 9 Ncpi
... 10 Research Study Example Cbtn
... 11 Research Study Example Cmg
... 12 Artifacts Summary
.... 12.1 Shared Data Model for Research Collection
.... 12.2 Shared Data Model for Research Data Access Policy
.... 12.3 Shared Data Model for Research Study
.... 12.4 NCPI Research Access Policy
.... 12.5 NCPI Research Collection
.... 12.6 NCPI Research Study
.... 12.7 NCPI Research Study Group
.... 12.8 Research Study Subject
.... 12.9 Access Policy Description
.... 12.10 Access Type
.... 12.11 Label
.... 12.12 Research Study Acknowledgement
.... 12.13 Research Study Associated Party
.... 12.14 Research Study Design
.... 12.15 Research Study Result
.... 12.16 Research Study Subject Consent
.... 12.17 Research Usage Limitation Disease Code
.... 12.18 Research Web Link
.... 12.19 Collection Type
.... 12.20 MeSH Terms
.... 12.21 Research Data Access Codes
.... 12.22 Research Data Access Type Codes
.... 12.23 Study Name Type
.... 12.24 Study Personnel Role
.... 12.25 Collection Type
.... 12.26 NCPI FHIR Codes
.... 12.27 Research Data Access Codes
.... 12.28 Research Data Access Type Codes
.... 12.29 Study Name Type
.... 12.30 Study Personnel Role
.... 12.31 Baylor Hopkins Center for Mendelian Genomics (BH CMG)
.... 12.32 CBTN General Research Use (GRU) Consent DAC
.... 12.33 CBTN General Research Use (GRU) Consent dbGaP
.... 12.34 CBTN Genomic Summary Results (GSR) Allowed Access
.... 12.35 CBTN GRU data access via DAC
.... 12.36 CBTN GRU data access via dbGaP
.... 12.37 CBTN Operations Lead
.... 12.38 CBTN Registered Tier Access
.... 12.39 Children's Brain Tumor Network (CBTN)
.... 12.40 Children's Hospital of Philadelphia
.... 12.41 dbGaP PI
.... 12.42 dbGaP PI, X01 FY 2021
.... 12.43 Genomic Summary Results (GSR) Allowed Access
.... 12.44 HMB-IRB-NPU Consent
.... 12.45 HMB-NPU Consent
.... 12.46 Kids First X01s
.... 12.47 Participants consented under HMB-NPU
.... 12.48 Participants consented under HMB-NPU
.... 12.49 Participants consented under IRB-HMB-NPU
.... 12.50 Participants consented under IRB-HMB-NPU
.... 12.51 Participants from the CBTN research study
.... 12.52 Pediatric Brain Tumor Atlas
.... 12.53 Registered Tier Access
.... 12.54 The Centers for Medelian Genetics